Nora Krohn on Focal Dystonia: Why Progress Can Be Difficult to Recognise

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The article summarizes why it is so difficult to perceive real progress in recovery from focal dystonia and offers practical steps to overcome this problem.

Violist Nora Krohn holds her viola and talks about why it's hard to see progress in recovery from focal dystonia. Created by Chat GPT
Violist Nora Krohn holds her viola and talks about why it's hard to see progress in recovery from focal dystonia. Created by Chat GPT

Difficulty recognizing progress

Many musicians going through recovery from focal dystonia have one problem in common: they feel like nothing is changing. Even if their teacher sees a clear improvement, they themselves perceive stagnation.

Nora explains that this is completely normal. A musician will play a passage that could not have been played at all a week ago, and yet immediately say, "No, it's not better." This discrepancy between reality and subjective feeling is one of the biggest obstacles to the process.

Progress faster away from the instrument

In the early stages of recovery, progress often appears first in working with common objects, not tools. The brain has fewer dystonic associations with the objects of everyday life, so it's easier to create healthy movement maps right there.

This means that, for example, typing on the keyboard will improve much sooner than playing the viola or violin. People often underestimate or underestimate this fact, but it is here that the foundations for changing the brain are formed.

Focus on what doesn't work

Another common trap is to focus only on what still doesn't work. The brain automatically notices mistakes, which creates the impression that everything is stagnant. Nora recalls the analogy of repairing a car: we can fix the wiring for months, but the car still won't start. However, this does not mean that the repaired parts were not necessary.

Recovery from dystonia is complex and often consists of dozens of small steps that are not immediately visible.

Switching between "Path A" and "Path B"

Nora works with the concepts of "Route A" (the dystonic pathway) and "Route B" (the new healthy pathway). If a person has not yet established a new way of moving, but tries to play a heavy repertoire quickly, the brain will automatically revert to the old dystonic patterns.

This switching prevents the body from maintaining stability and new patterns from becoming established. The more we use old movements, the less chance the brain gets to make new connections.

Effect of structural instability

According to Nora, structural instability is one of the key factors in dystonia. Some parts of the hand, wrist or palm may be weakened or overloaded by years of poor technique. These areas need to be restored – and this goes hand in hand with new movement patterns.

If we keep going back to the old moves, the structures don't have a chance to regenerate.

How to overcome the inability to perceive progress

Nora recommends several routes:

  • Keep objective records – monthly videos, not daily; observe whether specific movements or stability improve.
  • Focus on facts, not feelings – a feeling of stagnation is not evidence of stagnation.
  • Perceive the body – if the movements sound logical and are natural to the body, the brain responds to them.
  • Accept emotions – frustration is normal, but it must not drive decision-making.

Conclusion

Recovery from focal dystonia is often emotionally challenging precisely because we subjectively do not perceive progress. Nora emphasizes that this is not a reason to give up on the process. The brain changes even when we don't feel it, and evidence of improvement often exists before we notice it.

Notes

This article was created in collaboration with ChatGPT. Nora Krohn's YouTube channel: https://www.youtube.com/@norakrohn